Aislinn's Treasures: Aislinn's Treasures-In That Moment of Contact

A story without an author is not worth listening to.-Irish Proverb

Over a year ago, I began blogging for Miracles for Mito. Truth be told, it was a safe haven for me. I could share my journey with my daughter Aislinn. It's been my pleasure to write about angels in Aislinn's life. I shared inexpensive creature comforts because commercial items do not fit in her world. I poured out my heart in a blog about the realization her condition was not going to improve as I purchased her first wheelchair and mobility vehicle the MV-1. I shared the success of a meeting where her key specialists were present. Other blogs were about kind souls or a local photographer that a positive impact in our tiny world. I brought Aislinn's teacher into the spotlight because she is a gift to her craft. I could go on about the rest of them but I won't except for one that forever changed my life....

The most compelling blog was about the exome sequencing results. I searched for answers for more than seven years. The blog was titled Aislinn's Treasures Just GRIN. It publicized that Aislinn was one of three known cases concerning a rare diseased gene. How rare you ask? Well the current US Census Bureau world population 2013 estimate is that there were 7,119,506 people on earth as of October 22, 2013. So in essence. she was 1 in 2.4 billion at the time of the results. I wished to connect with the other two families.

Recently my wish came true with an unexpected twist. Maria, the President of Miracles for Mito sent me a text saying a someone was looking for me because they had seen my blogs. A mom (Stacey) with a daughter (Leila) who had the same rare diseased gene found me! We both have a daughter living with a diseased GRIN1 gene. And then there were four...

In that moment of contact, we cried tears of joy because one of our deepest wishes was coming true! I am honored and humbled to have been found by Stacey. I am astonished that my writings have brought two families together. Learning about Leila has brought comfort to my tiny world. Our journeys are similar but not identical. The girls are a few years apart nonetheless you will see some heart warming similarities in the pictures below. The power of the modern pen is mighty!

Aislinn Leila