There are people in Aislinn's world who make sacrifices for her. A teacher, a nurse, therapist, or a doctor who must think outside the box. It might be a boss that absorbs part of the work load for any number of reasons. Well the good ones anyway. Perhaps it's the other child waiting in the wings.
Some might say "it's your job" or "that's life" or "life is a b&$@#" instead of appreciating the dedication, energy and solid connections it takes to keep a family together, a good job, and maintain friendships when life gives you a special needs child that requires care 24/7. I just have to shake my head and say a prayer because I know my life is not for the faint hearted, nay sayers, or negative energy.
Let's get back to two people who sacrifice the most...her parents. Yeah, David and I. We are the glue or at times frayed threads that keep the family together while frequently being on red alert.
I like to think of us as Cu. Sorry CU Buff alumni I don't meaning you. I don't mean Copper Mountain either where I do much soul searching. I am talking about the element COPPER. Copper is much more efficient than glue that melts under pressure. Or a thread that can snap when tested because of its tinsel strength.
Copper is strong, flexible, absorbs heat, and withstands the bitter cold. Its properties help receive and transfers energy.
Copper is also full of tradition. Did you know that copper gifts are common for a 22nd wedding anniversary? It's true.
Imaging a element such as copper celebrating all it takes to be married for 22 years. Pretty impressive these days when under the best of circumstances.
Today is our 22nd wedding anniversary. In a brief and stolen moment tonight, we will be celebrating us. Renewing the energy in our marriage. At this point in our long arduous journey, we will remember the good things that brought us together. We will toast to the positive energy in our lives. It won't be about the gifts. On this day it will be about the strength of our bond as man and wife where no man or woman shall come between us.
Michelle D. Voss-Shelley (Mom to nine year old Aislinn with a GRIN1 mutation) (butterflyicebaby@gmail.com)





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